Canavan in the News

This section highlights stories about Canavan disease that have appeared in the news media.

The Canavan Foundation is not responsible for any errors that may appear in the news accounts.

Cancer Patients Challenge the Patenting of a Gene
When Genae Girard received a diagnosis of breast cancer in 2006, she knew she would be facing medical challenges and high expenses. But she did not expect to run into patent problems.
May 12, 2009

Guide Launched to Prepare Americans for Newly Passed Health Legislation
The Coalition for Genetic Fairness today announced the launch of an interactive, online guide to the landmark Genetic Information Nondiscrimination Act (GINA).
September 9, 2008

Taking a Chance on a Second Child
This isn’t a story of someone who left well enough alone; it’s a story of a woman who decided to find out what was behind Door No. 2.
May 11, 2008

Senate Passes Historic Bill on Genetic Information Nondiscrimination
The Genetic Alliance's press release.
April 24, 2008

Learn Something Jewish: The Ethics of Genetic Testing
It doesn't happen very often, but Jews across all denominations are in solid agreement about one thing: genetic testing should be done as early as possible.
February 21, 2008

Getting Tested: Why College Jews Need to Know Now
Freshman year, Shoshana Rosen took a test that determined her future.
February 21, 2008

Press Release
The parties have reached a settlement in Greenberg et al. v. Miami Children's Hospital Research Institute et al., a lawsuit pending in federal court in Miami
concerning the gene patent for Canavan disease, a devastating and presently incurable childhood disease.
September 29, 2003

How a Hole in the Head Made Medical History
Jerusalem Post
October 14, 2001

The Celebration
Writers Digest
November 1, 2000

Doctors Urge Screening for Disorder
The New York Times
April 27, 1999